For a summary of where I’ve been and where I’m going, start HERE.

After years of struggling with a complex compilation of medical problems, including a diagnosis of adult onset mitochondrial disease, I have decided to jazz things up a bit. To quote Anthony Robbins, “If you do what you’ve always done, you’ll get what you’ve always gotten.”

Allopathic medicine has offered me little in the way of relief over the past 5 years and has left me frustrated and on a downward spiral of declining health. When my neurologist suspected in early 2012 that I had epilepsy on top of everything else, I decided enough was enough. I spend my time pouring over research articles, talking to other patients, and studying nutraceuticals and orthomolecular health. I am using a combination of allopathic medicine and functional medicine to get to the bottom of what is making me sick, and I have discovered a passion for nutrition in the process.

Sound a bit far fetched? Some days it does to me too, but the proof is in the pudding. We are all individuals and you learn to do what works for you because you only get one shot. The allopathic approach stopped working for me, so I decided to embark on an experiment to see if I couldn’t learn to balance things out on my own with some help from different professionals. What have I got to lose? I can’t be too far off base in my thinking or practices because a long-term member of my treatment recently looked at me and said, “You’re better. I don’t know why you’re better, but I’m glad you are!” 2 months ago I couldn’t get out of bed to function and the future seemed non-existent. Yesterday I spent all day prepping dinner for friends and enjoyed my time with them. That’s progress!

My energy is increasing and so is my level of functionality. Don’t get me wrong, I have a LONG way to go in my attempt to reverse the damage, and I might not succeed 100%, but my ultimate goal is to help others learn to navigate the healthcare system, advocate for themselves, and learn to eat for health and live with vitality regardless of what life throws at them.

This blog will be compilation of stories and recaps of various experiences I have had since the onset of my illness in 2007 and it will also include information about what I’m doing now to give my body the best possible chance at making a full recovery. Many adult mitochondrial disease patients have been contacting me and asking, “What are you doing??” I am happy to share, but know that it’s a lot of work and it takes practice, patience, determination, and commitment. I don’t advocate my approach as medical advice, nor do I advocate it as a “catch-all” cure for only adult mitochondrial disease patients. I am far from practiced and I am far from cured. If you have been diagnosed with ANY sort of chronic illness or autoimmune disease, whether it’s MS, mental illness, cancer, cystic fibrosis, RA, IBS, Crohn’s, Reynaud’s, Celiac, fibromyalgia, CFS, etc, or you’re just sick of feeling like crap all the time, there is a strong possibility that you can help your body to function better within its current limitations and possibly slowly restore it to better functioning. When you learn more about how your body works, you develop a greater appreciation for what you put into it and how you care for it.

So stick around, comment, do your research, and, if you’re so inclined, talk to your doctor about giving some of my suggestions a try. Join me on my journey!

I am not a doctor or nutritionist, and nothing on this blog should be constituted as medical or professional advice. You should discuss any changes to your medication, treatment, diet, or exercise regimen with a member of your OWN treatment team prior to initiating. This blog is an opinion blog written by a layman and I am not responsible or liable for any emotional or physical problems that occur directly or indirectly from utilizing this blog.


3 Responses to “About”

  1. salijackt April 23, 2012 at 12:59 pm #

    Yay! I like the new title of the blog and the new layout. I’ve updated my link on my site…

  2. sugarmagnolia324 May 1, 2012 at 8:20 am #

    Hello, amber recommended your blog to me. My son is “suspected ” mito. I can relate to much of what you have described. I look forward to following your story. We are in the process of making serious lifestyle changes over here.nothing else has worked. My little one has medically issues as well. And I am basically allergic to most foods… lol

    • theprogressivepatient May 1, 2012 at 1:17 pm #

      I’m happy you are here! I hope that you will find this information live-changing. So little emphasis is placed on nutrition and diet in the medical community. I strongly believe that you can put your family on a better track towards wellness and health. Don’t be afraid to “wow” the doctors. I know I’ve already wow-ed two of mine (plus my physical therapist!)

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